Myositis clinical trial opportunities

6th January, 2024

Members of Myositis UK living with myositis have been invited to find out more about taking part in two active clinical trials/studies. 

VALOR Study 

The VALOR Study is a clinical study sponsored by Priovant Therapeutics for adults (from 18 to 75 years old)...

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AMAZING NEWS! The World Myositis Day – WMD – has been founded!

21st September, 2023

Representatives of various international myositis groups and – organisations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day. This special day will be celebrated every...

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Four research projects awarded funding from Myositis UK

19th June, 2023

Myositis UK recently adopted a new process for reviewing grant applications to decide which research projects to fund in the field of myositis. We are pleased to be able to share more information about the four projects which have...

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What is immune mediated necrotising myopathy?

9th September, 2022

Dr James Lilleker and Dr Hector Chinoy of The University of Manchester have put together this information about immune mediated necrotising myopathy to support those diagnosed with it or simply wishing to know more.  What is it? Immune Mediated Necrotising Myopathy (IMNM) is...

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Take the Global Rheumatology Alliance Covid-19 Vax Survey

8th April, 2021

The Covid-19 Global Rheumatology Alliance has a new patient survey which members of Myositis UK are encouraged to take part in.  The goal of this international adult patient survey is to understand how people with rheumatic disease make decisions regarding Covid-19...

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Don’t forget to complete your membership update form

30th March, 2021

IMPORTANT NOTICE FOR MEMBERS If you wish to continue your free membership of Myositis UK, please ensure you return your membership update form by 5 April 2021. These were sent to you either my email or post (depending on your preferences) back in...

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New patient telemedicine survey

3rd February, 2021

The Covid-19 Global Rheumatology Alliance is running a new patient telemedicine survey which Myositis UK is inviting members to take part in.  The patient telemedicine survey is for adult patients with a rheumatic disease or the parents/caregivers of a child with a...

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Upcoming Webinar in the US

10th January, 2021

The National Organization for Rare Disorders (NORD) in the United States is hosting a special Covid-19 vaccines update webinar which you are welcome to attend. The 'COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community' webinar will take place...

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GCOM postponed until 2022

4th October, 2020

The 4th Global Conference on Myositis (GCOM) has been postponed until 2022 due to the ongoing Covid-19 pandemic.  The event had been due to take place in March 2021, but will now take place from 16-19 March 2022 in Prague, Czech Republic. GCOM...

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Invitation to virtual thesis seminar

7th September, 2020

Myositis UK members are invited to attend a virtual thesis seminar on 16 September at 6PM BST (1pm EDT) with Kyla Britson.  Based in the US, Kyla was one of the three young researchers awarded a speed funding grant by Myositis UK...

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