Take the Global Rheumatology Alliance Covid-19 Vax Survey

8th April, 2021

The Covid-19 Global Rheumatology Alliance has a new patient survey which members of Myositis UK are encouraged to take part in.  The goal of this international adult patient survey is to understand how people with rheumatic disease make decisions regarding Covid-19...

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Don’t forget to complete your membership update form

30th March, 2021

IMPORTANT NOTICE FOR MEMBERS If you wish to continue your free membership of Myositis UK, please ensure you return your membership update form by 5 April 2021. These were sent to you either my email or post (depending on your preferences) back in...

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New patient telemedicine survey

3rd February, 2021

The Covid-19 Global Rheumatology Alliance is running a new patient telemedicine survey which Myositis UK is inviting members to take part in.  The patient telemedicine survey is for adult patients with a rheumatic disease or the parents/caregivers of a child with a...

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Upcoming Webinar in the US

10th January, 2021

The National Organization for Rare Disorders (NORD) in the United States is hosting a special Covid-19 vaccines update webinar which you are welcome to attend. The 'COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community' webinar will take place...

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GCOM postponed until 2022

4th October, 2020

The 4th Global Conference on Myositis (GCOM) has been postponed until 2022 due to the ongoing Covid-19 pandemic.  The event had been due to take place in March 2021, but will now take place from 16-19 March 2022 in Prague, Czech Republic. GCOM...

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Invitation to virtual thesis seminar

7th September, 2020

Myositis UK members are invited to attend a virtual thesis seminar on 16 September at 6PM BST (1pm EDT) with Kyla Britson.  Based in the US, Kyla was one of the three young researchers awarded a speed funding grant by Myositis UK...

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Reminder: Take part in Covid–19 Global Rheumatology Alliance survey

5th June, 2020

The Covid-19 Global Rheumatology Alliance is continuing to gather patient experience surveys which Myositis UK is inviting members to take part in. You can partake whether or not you have been diagnosed with coronavirus (Covid-19). The patient experience survey is for adult...

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Myositis UK’s Les and Irene take on the 2.6 Challenge

1st May, 2020

Leading from the front, Les and Irene Oakley (Myositis UK chair and co-ordinator) have been taking part in a week of fancy-dress-inspired fundraising for the 2.6 Challenge.  In the wake of the Covid-19 outbreak, the 2.6 Challenge is a nationwide fundraising effort...

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Take on the 2.6 Challenge for Myositis UK

25th April, 2020

Have you heard about the 2.6 Challenge? This national fundraising effort is launching on Sunday 26 April to help save the UK’s charities just like Myositis UK. How will you take part?

On Sunday 26 April, Myositis UK...

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Second upcoming webinar: Living with myositis during Covid-19

3rd April, 2020

Myositis UK invites members to join a second online webinar on Wednesday 8 April to learn more about living with myositis during the coronavirus outbreak (Covid-19). This webinar follows on from the success of the first one held a few weeks ago,...

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